Quantified selfing: elitist and privacy invading

[grow_thumb image=”https://telecareaware.com/wp-content/uploads/2013/02/gimlet-eye.jpg” thumb_width=”150″ /]The last place you’d expect to see a populist view of Quantified Selfing, outside of the retrograde publications perused by The Gimlet Eye, is Wired. All these Fitbits, Jawbone UPs, Misfit Shines, baby monitors and of course Google Glass cost, cost, cost–upfront and especially for the ongoing subscription services. Even wearables, at this point, are nowhere near cheap and cheerful nor will be for some time. Is QS a luxury of the residents of Elysium? Wired’s Quantified Man, Chris Dancy, toting up his five-sensor/system cost, pays $400-$1,000 per month. The Eye tears up at the effect on the exchequer. But the most painful point for the article’s writer is less elitism than privacy: all the data churned out, existing somewhere to be mined, and all those ad messages waiting to be served up on Glass. PPG–pay per gaze–indeed. Your ‘Quantified-Self’: Are Wearable Technologies Just a Luxury for the Upper-Class? 

Doro 2.0 smartphone QSs with Withings (EU)

[grow_thumb image=”https://telecareaware.com/wp-content/uploads/2013/09/Doro-Liberto-810.jpg” thumb_width=”100″ /]Doro’s unveiling of their second smartphone, the Doro Liberto 810,  along with its ‘privileged access’ to two Withings devices–the Smart Body Analyzer (weight, body fat, heart rate) and Pulse Smart Activity Tracker–continues their moves into older adult-appealing mobile telecare/telehealth offerings, as tracked by founding Editor Steve since at least 2009.  Doro’s assertive move into Quantified Selfing as part of what they call ‘the world’s most liberating smartphone’, is more fully featured and was predicted by David Doherty earlier this year [TTA 25 Feb]. It is also not Doro’s first big alliance; late last year, Bosch Healthcare announced that Doro would be the mobile platform for telecare offerings in Germany and Sweden [TTA 16 Nov 2012]. Both the release and Mobihealthnews indicate that this offering will roll out to select European markets initially, but the latter states that a similar offering will debut in the US by early 2014. (For US readers, Doro is equivalent to GreatCall’s Jitterbug line) According to Mobile, the Liberto will be available in the UK in October.

Can self-tracking drive you crazy?

Fine weekend reading. It’s isn’t often that this Editor picks up an article headline ‘as is’ for our readers, but on this fine Saturday morning she does not want to mess with perfection! Carolyn Thomas, a previous Soapboxer and a leading Canadian women’s heart health/health ethics advocate, takes on the Quantified Selfers and, in the view of this Editor, the Digital Health Hypester Horde (D3H) with a bristling critique in The Ethical Nag. Yes, Virginia, there can be such a thing as too much chocolate and too much QSing. Do you really want to live in a heightened state of endless anxiety, with your day depending on minor result twitches? She presents an exchange between a leading heart patient/advocate, Hugo Campos, on Twitter, endlessly self-monitoring via AliveCor, who is having a PVC (skipped beat) episode that is best explained by…anxiety. One early QSer of 40 different health measurements daily abandoned her very public quest stating “Each day my self-worth was tied to the data…I won’t let it be an instrument of self-torture. Any. More.” And there is the time bomb of genetic testing–genomics, a source of endless wonder in the D3H world. A must read (any article that weaves in quotes from Deming and Serres has to be!) Also thank you Carolyn for the citation of The Gimlet Eye’s commentary on the Thomas Goetz ‘diabetic paradox’ (canary in the mine) article.

Patient non-compliance=toxic healthcare system?

Updated 20 June

A decidely contrarian view. Medication and treatment non-compliance is listed as one of the top ‘evils’ that patients inflict on the system which negatively affect outcomes and increase health costs. The doctor/hospital/insurance company laments, Why don’t they do what we tell them to do, exactly? Can’t we punish the patient for this?  But what if non-compliance indicates a bigger problem to be solved in the system, comparable to a canary’s silence in the mine when toxic gases are present? Maybe it’s because clinicians don’t take the time to understand the patient’s life and how to fit the treatment. Victor Montori, MD of the Mayo Clinic, at MedCityNews’ ENGAGE conference last week pointed out that patient non-engagement can point to the following:

  • The treatment isn’t right for that patient to begin with, and asking him to do more of it is only going to make matters worse.
  • The medication and patient options aren’t adequately explained prior to the protocol starting or the prescription–after going home and reading the side effects of the drug, or talking to a friend, the patient opts out. Or the patient doesn’t understand or trust the drug, protocol or doctor.
  • The burden of treatment or change is too much (temporarily or permanently) to handle for the sick patient (e.g. additional monitoring, diet)

To Dr. Montori, the best health system is not a ubiquitous, authoritarian one permeating every facet of life, but one that actually shrinks in size, makes it easier for the patient to follow treatment, focuses on treatments that reasonably match a patient’s lifestyle so that the person is ‘able to fully play the role he plays in his life’–in other words, meets the patient ‘job to be done.’ Mayo doc: Stop blaming patients. Healthcare industry’s take on non-compliance is all wrong (MedCityNews) Video excerpt 01:50.

Update 20 June: Full video of Dr. Montori’s talk via YouTube, Patient Centered Care–The Right Thing to Do Right (29:03)

Previously in TTA: Type 1 diabetes self-monitoring as a perpetual Battle of Stalingrad in The diabetic experience: the fly in the Quantified Selfing ointment.

The ultimate in Quantified Selfing?

The Quantified Brain may be the ne plus ultra of QSing. Only a neuroscientist on a Mission from God (and a really good insurance plan) would be getting twice-weekly MRIs and weekly blood tests for hormonal and gene activity levels. Russell Poldrack’s year-long self-study is to correlate his diet and moods, mental state and outdoor time with the scans and blood testing to capture the fluctuations in brain activity and networking–and his physical state. Example: his psoriasis flareups with increases in stress and changes in gene activity. Finally a bit of QSing that doesn’t have a hint of the faddish about it.  The Quantified Brain of a Self-Tracking Neuroscientist (MIT Technology Review)

W/Me tracking wellness and ‘real age’ via stress

The W/Me wristband developed by California-based (where else?) Phyode turns colors based on key physical manifestations of mood, with the goal of helping wearers control them. It translates the data it collects into three scores: mental state, agility, and ANS age readable on a smartphone via Bluetooth. Mental state can be either passive, excitable, pessimistic, anxious, or ideally, balanced somewhere in the middle. Since this Editor can see exceptions in places like NYC and LA, one wonders if they are on a different scale. Perfect for your favorite QS-er along with their Jawbone or FitBit. W/Me is on Kickstarter and oversubscribed for a ship date of August.  Articles: PSFK/Boehringer Ingelheim blog, TechCrunch. Hat tip to TANN Ireland’s Toni Bunting.

‘Nudging’ chronic condition-ers to QSing

[grow_thumb image=”https://telecareaware.com/wp-content/uploads/2013/02/gimlet-eye.jpg” thumb_width=”150″ /]TripleTree, a VC that funds many iHealthy companies, casts a hopeful eye (certainly not a Gimlet Eye) at the consumer-driven growth of health tech and finds the steam generated by the Quantified Selfers and Fitness Addicts, stoked by the Healthcare Digerati who are not Going Surfing USA, is cooling fast and flatly. The Big Bucks are betting on ‘nudging’ (or as Aunt Lillian put it, ‘nooodging’) those diabetics, overweight couch potatoes, smokers and consumers of 72-ounce sodas, those naughty 20 percenters who spend an estimated 80 percent of US healthcare money, towards the New Jerusalem of Healthy Lifestyles and Big Savings. Of course, as the writer points out, payers and pharmas are still gathering data and documenting that increasing physical activity or sensoring med reminders, despite their Quantum of Cool, actually gets everyone to this destination and not another. One increasingly popular Road to Perdition is to introduce the refractory to the Carrot und Stick Gauntlet located at the corner of Tech, Privacy and Cost [TTA 21 March.] But the intensely blinking Big Yellow Light is that the Diabetic Experience [TTA 5 April] points out that ‘nooodging’ people to do something they don’t wanna and has uncertain, variable outcomes is not necessarily Their Road to Damascus. Personal Fitness, Chronic Condition Management and Connected Health

While The Eye takes The Road to the Beach in a 1946 Buick Super woody, Editor Donna notes the listing at the end of the article of the dozen finalists for the iAward to be announced 30 May, including AliveCor, Healthsense (a telecare system!) and Qualcomm Life.

Scanadu Scout emerging for crowdfunding

[grow_thumb image=”https://telecareaware.com/wp-content/uploads/2013/05/scout1.png” thumb_width=”150″ /]The Scanadu Scout [TTA 30 Nov 12], so widely touted as a ‘medical tricorder’ going for the Qualcomm Tricorder XPRIZE, listed on Indiegogo’s crowdfunding platform yesterday, and is already 3x oversubscribed at $311,000 with 29 days to go. Scanadu connects to your smartphone via Bluetooth LE and from a forehead readng calculates temperature, respiratory rate, blood oxygen, heartrate, blood pressure and stress. However it has no FDA nor CE approval, thus is being ‘quantified’ as a research tool not a vital signs monitor, so you too can be a Scout.  $199 now is the entry price but multiple package deals are still available, but you’ll have to wait till March 2014 at the earliest. Complete with glowing videos. Indiegogo, Wired UK.

News Flash: The Gimlet Eye just texted Editor Donna with a better name; the Scanadu Nirvana, for the altered state the hordes of Quantified Selfers (QSers) are undoubtedly in.