A Tuesday Must Read: “Confessions of a non-compliant patient”

Carolyn Thomas is the ‘Heart Sister’ of the eponymous blog, and has been a guest columnist and commenter in these pages. Via Twitter she brought to her followers’ attention this back posting which chronicles how a person who normally copes with a chronic disease can be absolutely kicked in the kishkes* when a few other physical troubles are added to the pile. Alone, they could be coped with; aggregated and on top of difficulty functioning, they make for Misery. And Misery makes for Non-Compliance. And Non-Adherence. And the Burden of Treatment gets ever heavier, and the frustration of both patient and doctor (pressed to quantify and meet goals) ever grows.

If you are designing technology around compliance, don’t be surprised if many of the people you could benefit treat it like measles if it’s not positioned right or is thinly disguised Nanny Tech. (See ‘Uninvited Guests‘)

Editor Donna will let Ms Thomas take it from here.

Related reading: Is how we are treating patients for chronic diseases (and pre-diseases) all wrong?

*Kishkes (New York Yiddish, antique) = guts.

Soapbox: Kicking the ‘Tweet the Meeting’ habit

[grow_thumb image=”http://telecareaware.com/wp-content/uploads/2014/07/twitterban-590×330.jpg” thumb_width=”150″ /]It’s time to go cold turkey. One of the hallmarks of being active on healthcare tech or digital health scene is Twitter. Even more than LinkedIn groups, websites and blogs, it’s how increasingly we communicate with and acknowledge each other in the field. But it has its shortcomings. It’s become a chore to follow the tweetstream in my (deliberately limited) account, because there’s all that filler. I have to scroll…and scroll…to find the ‘wanna read’ nuggets by those who post ‘the good stuff’ (and you know who you are).

The volume increases dramatically during conferences. There’s good links and photos, but increasingly it’s become a festival of incidental remarks about speakers being on (sans content links), tweets about going here and there, social pictures of lunches and dinners, selfies. Increasingly, no one puts down their phone! At sessions, instead of being riveted (or not) on the speaker, attendees are glued to their phones, furiously keyboarding and tweeting…whatever. It’s insulting to the speaker who’s trying to engage with the audience, for starters. Then there are the meetings with the tweetstream posted to the side of the stage–another distraction.  Most of all, by furiously fingering, aren’t you cheating yourself of the conference experience for which you or someone has paid dearly? Isn’t the point of being there human contact and time off the screen?

Carolyn Thomas, Canada’s own ‘Ethical Nag’ and ‘Heart Sister’, describes kicking Obsessive Live-Tweeting at Conferences far more wittily in How we got sucked into live-tweeting at conferences. An excerpt:

For too long, I’d been telling myself:

–that live-tweeting isn’t a problem for me
–that I could quit anytime
–that the tweets I send to my Twitter followers while listening to a conference speaker onstage are actually interesting, high-quality messages
–that it must be okay because everybody else in the audience is doing it, too

But now I know that it’s time to quit cold-turkey.

The Quantified Selfer’s Christmas form letter

[grow_thumb image=”http://telecareaware.com/wp-content/uploads/2013/02/gimlet-eye.jpg” thumb_width=”150″ /]  APPROVED by The Gimlet Eye, on assignment directing Air Traffic Control for Mr. Claus.

Dear ______,

I can see from my ______ wrist device that it’s once again time for my annual Christmas letter to update you on a number of personal facts about the past year! Lucky for you, I’ve been able to view my daily data on a variety of self-tracking devices using interactive graphs to spot trends and patterns so far.  The year raced off to a great start because I got a new ______ from Santa last Christmas. (Continued…)

Our final pre-Christmas post is from the ‘♥ Sister’ herself, Carolyn Thomas, who has written this most witty communication that you may well receive from your favorite (?) Quantified Selfer. If not, reading this you will be forearmed at holiday tables and gatherings. You will view your QS nephew or friend in a new, more tolerant light. Wearing their Google Glass, tracking the cookies and egg nog on their Fitbit or Jawbone UP, passing around the Misfit Shine, obsessing on what workout will most efficiently balance the caloric intake…. To the rescue? Spot the Dog. Fitbit, Jawbone and Shine make great chew toys, and Glass…will Spot get to it before the video hits the cloud?

We wish all of our readers a marvelous Christmas Holiday, Festive Season and Happy New Year! (and thank Carolyn for the reference!–Ed. Donna)