Ambivalence over end of life decisions (Europe)

Not telehealth or telecare directly, but relevant to many TTA readers, a new Europe-wide research findings from the King’s College London’s Cicely Saunders Institute and Project BuildCARE explores people’s preferences when it comes to decision-making at the end of life. Dr Daveson, lead author of the paper, said that when thinking about scenarios of lost capacity, for example, most people in Europe do not want to make decisions about their healthcare in advance. Some people decide not to make end of life decisions about their care before they absolutely have to because:

  1. They believe that they will not know what they will want to choose until they are in the situation
  2. It is easier not to think about it
  3. They think that avoiding making decisions beforehand will avoid burdening family members

However, 53% of survey respondents wanted their partner or spouse to be involved in helping them make their decision and 40% also wanted other relatives to be involved. This means that for many people these will be family decisions. Preferences for self-involvement in decision-making – new research findings from across Europe: What would you choose? KCL main site. Infographic (PDF download)

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